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Skull Mets Symptoms (updated 1/28/06

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Thank You Ladies for your input !!!

Symptoms of my mets to skull: - "boney changes" on he skull base pinched/pressured the cranial nerve 
  and caused a 6th nerve palsy in the left eye with bad double-vision - 
  don't know if the nerve will repair once the pressure is relieved 
- generalized headaches across my brow and temple 
- periodic sinus pain on the left (same side as the affected nerve) 
- more recently, all-over pressure headaches, including areas along the 
  back of my skull Diagnosis was just confirmed about 2 weeks ago ... I just stared 
steroids & radiation to my skull base and it seems to be helping the 
pressure/headaches some. Linda

1) Skull Mets: What were your symptoms and how was it found _____? I've had one skull met. Found in October, 2004 when I started having difficulties moving my tongue.These episodes would last about 60 seconds, 2 or 3 times daily. MRI of skull found the met, interfering with the nerves that control the tongue. Unusual, to say the least. It was treated successfully with 20 traditional radiation treatments. -Barbara

Symptoms of my mets to skull: - "boney changes" on he skull base pinched/pressured the cranial nerve and caused a 6th nerve palsy in the left eye with bad double-vision - don't know if the nerve will repair once the pressure is relieved - generalized headaches across my brow and temple - periodic sinus pain on the left (same side as the affected nerve) - more recently, all-over pressure headaches, including areas along the back of my skull Diagnosis was just confirmed about 2 weeks ago ... I just stared steroids & radiation to my skull base and it seems to be helping the pressure/headaches some. Linda

 
For several months I frequently felt painful areas on my skull, especially if I touched too hard with the hairbrush ( I have very thin hair) When I brushed it would feel really sensitive as if just to the touch of the hair. But the painful areas seemd to come and go, and were in various spots on my skull. I probably would have continued to put this pain on my skull down to imagination if I hadn't been suffering so much other pain in my shoulder, back and ribs, pain which quickly prompted my local doc, in april 2005, to send me back to my bc surgeon, who ordered bone scans. I haven't seen that original scan, but I gather there were numerous areas of uptake in my skull. Since being on Femara the painful areas have diminished.
Funnily enough, I felt quite affronted by having mets in the skull. In my ribs, shouldre, pelvis, leg, arm,... fine,... but in my SKULL! that was getting a little too close to home for my liking!
-Susan (Canada)
 
 
 

I have pain top right center of my skull. It's been there several months.. so far tests of the area have all been negative. We shall see!)
-LIN
 

 

 
Constant pressure, painful/tender to touch certain spots, eye and vision variances, sinus pain (sometimes), constant heavy feeling within the head . I often get pressure headaches across my brow. 
 
 

Susan Holmberg is also working on a Symptoms list too. The info will be found at BCMETS.org

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