Make your own free website on


How Someone Discovered they had Paget's Disease

Silicone Implants ?!
Mets Sisters Memorial Page
Mets Sisters Memorial page 2
Page left up in memory of the BCMets Crisis Fund
Lung & Chest area Mets (Symptoms) (3-7-06)
NIH's Explaination of METS
Neck area Mets Symptoms (added 2/20/06)
Diet, trials, exercise, support...( Ann Mc. sent to support group with links 2/7/06
Types of Invasive Breast Cancer (Ductal/Lobular)
Helpful Products List (Updated 4/9/06)
Bone Mets, Bone Marrow Biopsy "Listen!!!" (update 2/18/06)
Skull Mets Symptoms (updated 1/28/06
Brain Mets Symptoms (updated 2/20/06)
Chest Wall & Lung Symptoms (updated 1/28/06)
Eye Mets Symptoms (updated 2/16/06)
My BC Story (Sent to the Tryon NC bullentin)
The Business of Cancer
Inflammatory Breast Cancer
How Someone Discovered they had Paget's Disease
Ozdes Bodur's Story ( from Turkey)
Catherine's Mom, another Victim...
Tumor Markers

Paget's Disease

A lady developed a rash on her breast, similar to that of young mothers who are nursing.
Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After two rounds and it continued to get worse, her doctor sent her for another mammogram, and this time it showed a mass. A biopsy found a fast growing malignancy. Chemo was started in order to shrink the growth; then mastectomy; then a full round of Chemo; then radiation.
After about 9 months of intense treatment, she was given a clean bill of health. She had one year of living each day to its fullest. Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo. She had 5 great months, and she planned each detail of the final days. 
  After just a few days of needing morphine, she slipped away saying she had done what God had sent her into he world to do and now it was her time to go.
  PLEASE be alert to any thing that is not normal.
Her message is shown below: 

Paget's Disease:
This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and aureola. It appeared as a rash, which later became a lesion with a crusty outer edge. I would not have ever suspected it to be breast cancer, but it was. My nipple never seemed any different to me, but
the rash bothered me, so I went to the doctor for that.
Sometimes, it itched and was sore, but other than that it didn't bother me. It was just ugly and a nuisance, and could not be cleared up with all the creams
prescribed by my doctor and dermatologist for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned. Mine started out as a
single red pimple on the aureola. One of the biggest problems with Paget's disease of the nipple is that the symptoms appear to be harmless. It is frequently
thought to be a skin inflammation or infection, leading to unfortunate delays in detection and care. What are the symptoms? 
1. A persistent redness, oozing, and crusting of your mine did not itch or burn much, and had no oozing I was aware of, but it did have a crust along the outer
edge on one side.)
2. A sore on your nipple that will not heal. (Mine was on the aureola area with a whitish thick looking area in center of nipple).
3. Usually only one nipple is affected. How is it diagnosed? Your doctor will do a physical exam and should suggest having a mammogram of both breasts,
done immediately. Even though the redness, oozing and crusting closely
resemble dermatitis; (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy of your sore to confirm what is going on. 
My breast cancer has spread and metastasized to my
bones after receiving mega doses of chemotherapy, 28
treatments of radiation and taking Tamaxofin. If this
had been diagnosed as breast cancer in the beginning,
perhaps it would not have spread.
TO ALL READERS: This is sad as women are not aware of
Paget's disease. 
For more info go to
Remember, life is not measured by the number of breaths we take, but by
the moments that take our breath away
.. and then the day came when the risk to remain tight in a bud was more painful than the risk it to blossom.
      Anais Nin

Enter supporting content here

Click to see My Art Dolls,Paranormalbabies and misc...