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Eye Mets Symptoms (updated 2/16/06)

Silicone Implants ?!
Mets Sisters Memorial Page
Mets Sisters Memorial page 2
Page left up in memory of the BCMets Crisis Fund
Lung & Chest area Mets (Symptoms) (3-7-06)
NIH's Explaination of METS
Neck area Mets Symptoms (added 2/20/06)
Diet, trials, exercise, support...( Ann Mc. sent to support group with links 2/7/06
Types of Invasive Breast Cancer (Ductal/Lobular)
Helpful Products List (Updated 4/9/06)
Bone Mets, Bone Marrow Biopsy "Listen!!!" (update 2/18/06)
Skull Mets Symptoms (updated 1/28/06
Brain Mets Symptoms (updated 2/20/06)
Chest Wall & Lung Symptoms (updated 1/28/06)
Eye Mets Symptoms (updated 2/16/06)
My BC Story (Sent to the Tryon NC bullentin)
The Business of Cancer
Inflammatory Breast Cancer
How Someone Discovered they had Paget's Disease
Ozdes Bodur's Story ( from Turkey)
Catherine's Mom, another Victim...
Tumor Markers

Thank You Ladies for your help and helping others that will read this !!!

Hi Susan, I was ductal..non the distant past i had heard of cancer to the eye but never in a million years connected BC with the eye..what a bummer!!

I was diagnosed in August 1999. Had radiation to both eyes and they have not recurred. Bones seem pretty stable (extensive but stable), however in the last year the liver and lungs have progressed some. Anyway, I'm one of the "old time" metsters, having plodded along with this stinkin' stuff for 6 1/2 years. I also love my Retina Doc, he's the best, I see him every 6 months now. Jeanne

(I added this with this in here because the sinus so close to the eyes) ********************************************************************************** Cavernous sinus tumors • Acute or slowly progressive ophthalmoplegia is the dominant presentation, with diplopia (double vision) being the most common symptom. • • At times, painful diplopia is present. • • Usually the patient has a preceding history of cancer. Occasionally, cavernous sinus syndrome is the first manifestation of a systemic neoplasm. • • Exophthalmos can be seen. • • If the tumor is a pituitary adenoma, endocrine symptoms and visual loss may be present.

when i blink, it has trouble reopening 
> for a second. and sometimes, it's like someone is pulling a string on it 
and it 
> sort of closes a bit for no reason. somtimes it's like someone is pushing 
> it from the inside out. (hard to describe). just above that eye, in my 
> forehead, i also have been having a mild pain that comes and goes, very 
> infrequently at first (3 weeks ago), like, every few days and in the 
morning usually. 
> now it happens even other day or so, sometimes a few times a day. 
> it's kinda freaking me out. Debbie, I developed a tumor behind my left eye last July. One of the symptoms was 
ptosis, which was a gradual inability to move my left eyelid. Finally, my 
eye stayed shut and I was unable to open it at all. My other symptom was a 
chronic, excruciating headache behind my eye and extending upwards into my 
head. The tumor was too small to be seen on CT scans at first and it took 
three months of head scans to finally see it. I also had an ocular 
ultrasound, which gave us a much better picture of it. I had focused 
radiation to the tumor in October and I now have clean scans. I'm on Taxol now for liver and skin mets and whatever might still be in back 
of my eye. Karon**********************************

A book called FOREVER MOM. It was 
written by Kelly Ashey, and just published this year. 
In fact, Amazon has it set for release in March. Kelly's recurrence was 
to her eye also. She tells about her journeys to Sloan Kettering, 
Columbia and cancer centers in FL. She also tells of a spiritual 
awakening during that year of dealing with the eye. It is such an unusual place for a recurrence,**********************

I've been having head aches and beyond fatigue for a few months now 
but we did an MRI and the brain showed clear....skull is full of mets and so 
is mastoid. I also have a lot of weakness in lower legs and my eyes are 
becoming extremely sensitive to light. Eye Exam: Examination of the eye by an ophthalmologist (a medical doctor 
specializing in diseases of the eye) is the most important step in 
diagnosing melanoma of the eye. The doctor will look for enlarged blood 
vessels on the outside of the eye, which can indicate a tumor inside the 
eye. Using an ophthalmoscope, the ophthalmologist can get a very good look 
inside the eye and detect a tumor or other abnormality. Most of the time 
this examination alone can make the diagnosis. To confirm the diagnosis, 
imaging tests such as ultrasound may be required. Very rarely, will a biopsy 
also be needed. Ultrasound: This test works by "bouncing" high frequency sound waves off the 
tumor and reading their pattern. It is the single best test for diagnosing 
eye melanomas because they have a characteristic appearance on ultrasound. 
Using this test, doctors can confirm a diagnosis of melanoma of the eye in 
more than 80% of cases. Angiography: This is another technique used by ophthalmologists to help 
diagnose melanoma of the eye. A fluorescent dye is injected into the 
bloodstream through a vein in the arm. Pictures of the back of the eye are 
taken with light that causes the dye to fluoresce (glow). Although melanomas 
do not have a special appearance with this test, some other eye problems do. 
Doctors can use this method to tell if something is not a melanoma. Computed Tomography (CT or CAT scan): This test uses a rotating x-ray beam 
to create a series of pictures of the body from many angles. A computer 
combines the information from all the pictures to produce a detailed 
cross-sectional image. To highlight details on the CT scan, a harmless dye 
may be injected into a vein before the x-rays are taken. CT scans may 
sometimes be helpful in diagnosing eye melanomas. Magnetic Resonance Imaging (MRI): This procedure uses large magnets and 
radio waves instead of radiation to produce computer-generated pictures of 
internal organs. The pictures look very similar to those of a CT scan, but 
are more detailed. MRI may also be useful in diagnosing melanomas of the 
eye. Biopsy: In this procedure, a small needle is passed into the eye, and cells 
from the tumor are sucked up into a small syringe. After processing and 
staining, a pathologist (a doctor who specializes in looking at tissues 
under a microscope) examines these cells. Although a biopsy is recommended 
for confirming the diagnosis of most cancers, it is usually not used for eye 
cancers because it is very difficult and risks damaging the eye and possibly 
spreading the tumor outside the eye. Because of this, and because almost all 
cases can be accurately diagnosed by the eye exam and imaging, most people 
with melanoma of the eye are treated without having had a biopsy. ***************************************************************************

I kept noticing these flashes in the 
> bottom of my field of vision. Then every day it 
> creeped up a little higher. It looked like flashing 
> worms wiggling around in a circle... like cells moving 
> under a microscope. By the time I got back and saw my 
> onc, 12/21, he just couldn't believe my eyes had 
> anything to do with the cancer. Two days later i went 
> to the optmitrist to look at my retinal pics and the 
> rest is history, albeit, very recent Hx. 
> I'm seeing one of the top rentinal oncologists in the 
> country (so they tell me) Devron Char in SF, who 
> believes in tx w/ chemotherapy first to see if you can 
> shrink the tumors down w/o having to do rad. Then you 
> can save the rad for later if you need it. So i'm on 
> taxotere and adria weekly plus 2000mg Xeloda po daily. 
> My eyes haven't gotten worse since my 1st tx, last 
> thurs and then a 2nd this thurs but they aren't better 
> yet either. I have one brain lesion in my cerebellum, 
> 8mm. Because of it's size they are not too concerned 
> about it yet. My lungs are affected bilaterally and my 
> bones too. But for right now I'm symptom free except 
> for the eyes. **************************************************************************

I also have a sore eye upon waking in the morning with water 
in the eyelid. It is very sensitive to light. Just this morning the 
other eyelid has retained some water in the lid. I'M A MESS. Since about 
a month I cannot look straight forward and see normally because my 
vision is distorted. I recently found out my right eye is partially 
FROZEN. It can't track with the left eye. It is visably out of whack 
when I try to focus upwards to onlookers.************************************************************ *******************************

Harrrrrrrumph. Girls. Can we talk pain here? I had a small one-centimeter 
eye tumor in the summer of 2003 which caused me life-altering pain. I mean, 
the pain was so horrible that I pleaded with my doctors to amputate my head. 
I was hospitalized twice for pain and given Demerol and Morphine around the 
clock. For several MONTHS, no one could say for sure whether I had an eye 
tumor or not because it didn't show up on my scans, so I was tentatively 
diagnosed with: a.) pesticide poisoning, b.) sudden onset of migraine, c.) 
cluster headache, d.) CNS mets, and e.) brain mets (don't ever mention 
spinal tap in my presence). Finally, the tumor grew enough to be visible on 
a scan and it was easily radiated. To this day, my left eyelid droops. 
Apparently, the tumor, small though it was, was sitting on a nerve bundle 
behind my eye. Now, really, who can top that? Is there some sort of award around here for 
worst pain? I am nominating myself. Karon (Karon is no longer with us, but many will always remember her.) *************************************************************************

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